Are you attending NCRA in Washington DC this year? Don’t leave early!!! Registry Partners will be participating in two sessions on Saturday. The NCRA Education Committee will be presenting Long Ago in a Registry Far, Far Away: Distance Learning and the Registrar on Saturday, April 8th from 11:15AM to 12:00 PM.  Susanna Mitchell will be a member of the panel discussion. Have you ever experienced remote…

Early last month, Registry Partners shared the news of The Cancer Moonshot, an exciting initiative to accelerate cancer research aims to make more therapies available to more patients, while at the same time improving our ability to prevent and detect cancer at its earliest stage. The Cancer Moonshot Task Force is working with the Blue Ribbon Panel, a working group established by the National Cancer Advisory…

My mother-in-law, who lives many states away, was recently diagnosed with Multiple Myeloma. That set me to looking at all our registry resources from a patient’s point of view, and trying to identify additional ones.  I was surprised to find that my local community hospital had little to offer me (“We usually refer those patients to specialists, and don’t have a lot of experience with helping…