This month’s registry spotlight is on the Center for International Blood and Marrow Transplant Research (CIBMTR).
Registry Partners’ Pediatric Service Line assists facilities and institutions nationwide with their CIBMTR data collection efforts. We serve as a complete outsource solution or can augment the facility’s current data collection team to ensure high quality, timely, and accurate data collection and submission.
Read on to learn more about the CIBMTR Registry.
What is the Purpose of the CIBMTR Registry?
From the CIBMTR website: The CIBMTR is a research collaboration between the National Marrow Donor Program (NMDP)/Be The Match, the Medical College of Wisconsin (MCW), and the global scientific community to advance hematopoietic cell transplantation (HCT) and other cellular therapy worldwide to increase survival and enrich the quality of life for patients. This is accomplished by:
- Leading and conducting research studies
- Collecting and maintaining outcomes data
- Providing access to outcomes data
- Providing access to research repository samples
- Providing statistical expertise to researchers
- Providing education, guidelines, and training
What are the Benefits of Participating in the CIBMTR Registry?
CIBMTR has many benefits for facility participants, including:
- Opportunity to join working committees
- Support for submitting study proposals
- Repository for data collection
- Ability to enroll patients in clinical trials
- Providing help for research studies
What type of information does CIBMTR collect?
CIBMTR collects a multitude of data related to HCT and cellular therapy, including:
- Patient demographics
- Pre- and post-transplant data
- Product details
- Disease data
- Mortality data
- Follow up data
What tools are used in the data collection process for the CIBMTR Registry?
Data collection is completed via the FormsNet3 online application. Also available to assist with data abstraction are data collection forms and the forms instruction manual for collection reference.
If you are interested in learning more about the various registry services Registry Partners offers, click here or email info@registrypartners.com.
—
Resources:
https://www.cibmtr.org/About/WhoWeAre/Pages/index.aspx
https://www.cibmtr.org/About/WhatWeDo/Pages/index.aspx
https://www.cibmtr.org/About/GetInvolved/Pages/index.aspx
https://www.cibmtr.org/DataManagement/SystemApplications/Pages/default.aspx